Some years ago I was introduced to a man who was suffering with ALS, or Lou Gehrig's disease. At that time, David was searching for something, or maybe many things, to help him get through this nightmare diagnosis he had been given. When I first met him he was able to walk and drive, and had just started doing restorative yoga with a friend of mine. Within a month of going to the yoga studio David had deteriorated enough to have to be in a wheelchair. From then on all of his new ventures would have to come to him.
It was at this point that he asked if I would come and do some work with him. Nothing could have prepared me for this angry, aggressive person who would yell at his aide if things weren't quite right. The fear he felt is too hard to put into words, but it showed in his eyes and I could feel it in his heart. I explained to him the things we could do together to alleviate some of the anxiety and stress he was feeling. At that point I never mentioned anger, as he clearly was not ready to confront that emotion. I also felt he was a little sceptical of me, so less was better. I talked to him about his energy and how we could release some of his blockages, which would make him feel more relaxed.
Through the years of doing work on myself I found that being able to breathe properly was very important and this would be something I would practise with David on an ongoing basis. Like most people, he did not know that he was not breathing as he should. It was of great help that my friend was coming to the house to do yoga with him so she was able to reinforce this practise.
David's wife was a very sweet lady who was trying so hard to always be there for him, but the stress of this debilitating disease was a lot to bear. She also had two boys of college age who were going through their own issues, along with the fact that their father was dying a slow death right before their eyes. David wrote for a living, so it was very frustrating when his hands could no longer press the keys, and it seemed to take such a long time for voice recognition to be set up on his computer so he could speak the words instead of using the keyboard. It was just about a month before his voice failed and that was the end of that.
I would come to see David every week. We would do some meditation together and talk about his thoughts and how he could try and be more positive. I would place his hands over his heart so that he could feel how closed off he was. He got it, but was too afraid to open up and be at peace with his life as it was. After working on his energy he would sleep very peacefully. That was always a relief for his wife, as sleeping was one of his fears because he was afraid he wouldn't wake up. I know that his wife would often lay with him to give him some comfort.
David loved to be touched, so just giving him a hug and brushing his face would make his eyes sparkle, much like comforting a young child. I never really knew how much I was doing for him because he was so engulfed with fear, but he always asked me to come back so I knew in one way or another I had made a difference. Each week it was like starting over -- his eyes were full of fear and anger, but by the end of the session he would give me a broad smile, which would make it all worthwhile.
As time went on you could see the toll that all of this was taking on David's wife. She no longer left the house to teach kinder music. One thing that seemed to lift her spirits, though, was when her twin sister would come and stay for a week or two. I could see the connection between them, but I know it was hard for her sister to understand what was going on. She couldn't really be on board because she wasn't going through this nightmare.
Giving David's wife a hug was always very gratifying for me as it seemed the least I could do for her. We would just stand and hold each other and I would rub her back, feeling all the emotion of her heart. She was always so thankful. This is such an easy, loving thing to do, and yet people can't always understand how much a hug can mean.
One day I arrived at the house to find a tree had fallen in the driveway. I became very emotional and felt that this was some sort of sign, but everything else seemed as normal so I didn't think much about it. At this point David could do nothing for himself except move his head -- his throat didn't work and he had a feeding tube in his stomach. David seemed a little more peaceful that day, and when I was working with him, I saw an angel standing by his bed. I had never seen an angel so clearly before -- normally it is just the sense of something being there. I just said, "oh, it's the angel of death," not thinking what that meant. I left David in a very peaceful state. His wife was in the garden talking to the tree people, but she asked me to wait, as she wanted to talk to me. I had no intention of telling her about the angel that I saw with David. Tears were rolling down her face as she told me that David had refused to have a breathing tube inserted. He'd made his own decision to pass in a dignified manner. That is the one thing with this disease: the brain stays intact, entombed in a non-functioning, lifeless shell. The fallen tree, the angel -- now it all made sense to me.
I cried all the way home. I had grown to love David as I tried to figure out who this man was before illness, anger and fear had set in. I had been in this man's life for nearly eighteen months and I had known about him for a few months before that. I felt the love he had for his wife and his sons, but I also saw the toll that this love had placed on all of them.
David passed three weeks later but I only saw him once more. I knew some time before that I wouldn't be there at the end. This was part of his journey, not mine. I had arranged a trip some months before and David passed when I was on my way back home.
My friend and I went to David's memorial service, which was held very fittingly in his own backyard. It was a lovely, warm, funny ceremony because this is the man that he was. It would have been nice to have known David under different circumstances, but I am glad that I had this opportunity to be of help. He will always be a part of me.